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Personal Involvement with Celiac Disease as a Motive for Research among Celiac Disease Researchers

Banegas, M.; Sprague, R.; Vigna, C.; Gonzalez, J. E.; Flores Marin, D.; Palacios, C.; Silvester, J. A.; Therrien, A.

2024-09-24 gastroenterology
10.1101/2024.09.22.24314161 medRxiv
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IntroductionWe investigated the frequency of personal involvement with celiac disease (CeD) among CeD researchers and their motive to pursue CeD research, compared to researchers in inflammatory bowel disease (IBD) or type 1 diabetes (T1D) research. MethodsAn online survey was sent to CeD, IBD and T1D researchers. Results42% of CeD researchers had an involvement with their research interest, which was similar to T1D (51%) and significantly higher than the IBD respondents (27%, p<0.02). DiscussionPersonal involvement is common among the CeD researchers. Personal involvement with the disease may be beneficial when conducting patient-oriented research.

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