Rethinking wellbeing measurement: learning from a scale development study with adolescents living with HIV in Zimbabwe
Mavhu, W.; Dambi, J. M.; Simms, V.; Martin, F.; Lariat, J.; Mbundure, R.; Makoni, L.; Kafata, L.; Wogrin, C.; Chitiyo, V.; Mutsinze, A.; Cowan, F. M.; Willis, N.; Bernays, S.
Show abstract
Adolescents living with HIV (ALHIV) in Eastern and Southern Africa experience substantial challenges around medication adherence, treatment, care, mental health and wellbeing. Although interventions such as Zvandiri aim to strengthen mental health and wellbeing to impact HIV treatment outcomes, available measures often focus on negative outcomes or rely on positive psychology instruments developed in high-income settings. These tools may not adequately capture culturally embedded, relational and fluctuating dimensions of wellbeing among ALHIV. We describe the development of the Zvandiri Character Strength (ZCS) scale and draw methodological lessons for culturally grounded wellbeing measurement. The multi-stage scale-development process (2023-2025) comprised a scoping and systematic review, qualitative interviews and focus group discussions, expert panel input, construct and item prioritisation with ALHIV, cognitive interviews, iterative item reduction, and exploratory factor and Rasch analyses. An initial item bank was reduced to a 53-item candidate scale, then to the ZCS 38 and finally ZCS 25, based on quantitative analyses and participant feedback. The ZCS 25 was subsequently assessed using retrospective pretest, post-test and follow-up administration. The review identified conceptually overlapping positive psychological constructs, many of which are measured using instruments developed in high-income settings and not adequately validated for ALHIV in sub-Saharan Africa. Qualitative work highlighted connectedness, happiness, hope, motivation, optimism, and perseverance as key. In addition, discussions highlighted how wellbeing was relational, contextually situated, and often co-occurring with distress. Quantitative testing showed highly positive responses, disordered thresholds, ceiling effects, weak internal structure and fluctuating retrospective ratings. Participant feedback suggested that positive responses were likely due to affirmations and partly linked to social desirability. In conclusion, the ZCS scale did not support a single interpretable total score, but the process of its development offers important methodological lessons. Future measurement should begin with clearer construct definition, response-process validation, domain-level testing, and explicit decisions about whether the measure aims to capture lived wellbeing, domain-specific positive outcomes or intervention-relevant change.
Matching journals
The top 2 journals account for 50% of the predicted probability mass.
Similar papers in this journal
- The impact of COVID-19 non-pharmaceutical interventions on the lived experiences of people living in Thailand, Malaysia, Italy and the United Kingdom: a cross-country qualitative study 95%
- Acceptability, feasibility and appropriateness of intensified health education, SMS/phone tracing and transport reimbursement for uptake of voluntary medical male circumcision in a sexually transmitted infections clinic in Malawi: a mixed methods study 95%
- Rethinking HIV care for youth: Insights from qualitative research with youth in Chad 95%
Similar papers in this journal
- Navigating vaccination choices: The intersecting dynamics of institutional trust, belonging and message perception among Congolese migrants in the UK (A reflexive thematic analysis) 94%
- Improving patient-centred counselling skills among lay healthcare workers in South Africa using the Thusa-Thuso motivational interviewing training and support program 94%
- Assessing the impact of Covid-19 on Nurturing Care in Nairobi Slums: Findings from 5 rounds of cross-sectional telephone surveys 94%
Similar papers in this journal
- Symptoms of common mental disorders and adherence to antiretroviral therapy among adults living with HIV in rural Zimbabwe: a cross-sectional study 95%
- The Menstrual Practice Needs Scale Short Form (MPNS-SF) and Rapid (MPNS-R): Development in Khulna, Bangladesh, and validation in cross-sectional surveys from Bangladesh and Uganda 95%
- The World According to Girls: A Qualitative Study of School, Work, and Identity Among Adolescent Girls and Young Women Living with HIV in Ghana 94%
Similar papers in this journal
- Interrupting the intergenerational cycle of violence: protocol for a three-generational longitudinal mixed-methods study in South Africa (INTERRUPT_VIOLENCE) 95%
- Hair salons as a promising space to provide HIV and sexual and reproductive health services for young women in Lesotho: A citizen scientist mixed-methods study 94%
- Capability impacts of the Covid-19 lockdown in association with mental well-being, social connections and existing vulnerabilities: an Austrian survey study 94%
Similar papers in this journal
- Spiritual and religious aspects influence mental health and viral load: A quantitative study among young people living with HIV in Zimbabwe 94%
- Daughter circumcision and maternal life satisfaction: A cultural moderation effect revealed across two studies 93%
- Effects of a multimedia campaign on HIV self-testing and PrEP outcomes among young people in South Africa: A mixed-methods impact evaluation of ‘MTV Shuga Down South’ 93%
"Similar papers" are the closest papers from that journal in the model's embedding space. They show what the match is built on, but the ranking comes mostly from a classifier over the whole training set, not from these examples alone.