Building accessible resources to empower communities: the case of the Lupus Mexican Registry
Martinez, D.; Sanchez-Aguirre, D.; Sevilla-Parra, G.; Olivares-Martinez, I.; Bravo-Garcia, F.; Hernandez-Ledesma, A. L.; Aguilar, L. A.; Dominguez-Frausto, C. A.; Garcia, J.; Pena-Ayala, A.; Alpizar-Rodriguez, D.; Tinajero-Nieto, L.; Alcauter, S.; Medina-Rivera, A.
Show abstract
Motivation: Although SLE data in Latin America is increasing, clinical datasets remain difficult to access and interpret, highlighting the need for accessible tools that support data-driven precision medicine, citizen science, and public health initiatives. Results: We developed a user-friendly platform that enables us to explore LupusRGMX data through interactive queries, report generation, statistical modeling, and comprehensive insights. This resource supports community-oriented research, improves the visibility of underrepresented populations in lupus research, and provides a useful tool to enhance data accessibility. Availability and implementation: Developed in R using Shiny and bslib for interactive visualization and interface design. Available at https://github.com/NeuroGenomicsMX/Lupus_App_2.0 and https://lupusrgmx.liigh.unam.mx/shiny/lupus/
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