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Tiny Babies, Big Data: ICD Billing Code Patterns in Neonates Diagnosed with Genetic Disease in the Neonatal Intensive Care Unit
2026-02-11
genetic and genomic medicine
Title + abstract only
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PurposeGenetic diseases often present and are first diagnosed in the neonatal intensive care unit (NICU). Accurate identification of neonates with genetic diagnoses (GDs) in electronic health records (EHR) would enable a more complete understanding of their phenotypic spectrum, advancing care and personalized medicine. Prior research has used International Classification of Diseases (ICD) billing codes as proxies for GDs, though their accuracy for detecting confirmed GDs is uncertain. We evaluat...
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