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Single center Automated, Multi-Source deeply Phenotyped Heart Transplant Registry as a template to build tailored data infrastructure

2026-02-09 cardiovascular medicine Title + abstract only
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BackgroundTraditional heart transplant registries often lack the granularity required for deep phenotyping and rely on labor-intensive manual abstraction. We describe the methodology and validation of a next-generation, automated, multi-source registry designed to address these limitations. MethodsUtilizing a High-Performance Computing environment, we integrated structured data from Epic data warehouses (Clarity and Caboodle), external molecular diagnostics, and verified UNOS survival records. ...

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