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Knowledge representation of a multi-centre adolescent and young adult (AYA) cancer infrastructure; development of the STRONG AYA Knowledge Graph
2025-06-03
health informatics
Title + abstract only
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PurposeRare diseases are difficult to fully capture, and regularly call for large, geographically dispersed initiatives. Such initiatives are often met with data harmonisation challenges. These challenges render data incompatible and impede successful realisation. The STRONG AYA project is such an initiative, specifically focusing on adolescents and young adults (AYAs) with cancer. STRONG AYA is setting up a federated data infrastructure containing data of varying format. Here, we elaborate on h...
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