Experiences of accessing primary care by those living with long Covid in New Zealand.

BackgroundLong Covid is the persistence of symptoms beyond 12 weeks following acute Covid-19 infection. It is estimated to affect one in ten people and can be extremely debilitating. With few publicly funded long Covid clinics, most people rely on primary care providers as a first point of contact. There is currently limited understanding of the experience of accessing primary health care by adults living with long Covid in New Zealand. PurposeTo explore the experiences of accessing primary health care by adults living with long Covid. MethodsA narrative inquiry approach was used to capture participants lived experiences of accessing primary health care. Zoom interviews and discussions were conducted with study participants. The automatically generated transcripts were reviewed and corrected and the collated data were analysed using Braun and Clarkes thematic analysis. ResultsEighteen people participated in the interviews. Codes were identified and, through an iterative process, themes were generated, reviewed, and named. The seven themes included lack of upskilling of primary care staff; let down by the Government; self-advocacy and its cost; and throwing money at it. Conclusion(s)The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind, with some experiencing a lack of support in primary health care. Better support might be achieved through a public awareness campaign for improved delivery of credible information, and greater utilisation of the allied health workforce.