Quality of Life in Parkinson's Disease- Insights from a Single-Session Focus Group in Southwestern Ontario

BackgroundParkinsons Disease (PD) is a chronic illness that profoundly impacts quality of life (QoL). While many qualitative studies on QoL in PD have been conducted in different countries and cities around the world, the impact on QoL varies by region and it is important to explore the diverse factors influencing these differences. ObjectivesThis pilot study aims to explore the impact of PD on QoL for patients in Southwestern Ontario, Canada. These individuals may encounter unique challenges not currently addressed by the literature, potentially affecting their overall QoL. MethodsA single-session focus group was conducted in a rural town in Southwestern Ontario, Canada. Line-by-line reflexive coding was used to identify iterative themes. ResultsSeven themes were explored from the participants contributions, with key themes focusing on patients experiences navigating the healthcare system, the impact of non-motor and motor symptoms, and the role of social support in their QoL. ConclusionLiving with PD presents a variety of unique challenges that must be considered throughout future research and policy implementation. This pilot focus group study provides an in depth discussion of the key challenges faced by individuals with PD In Southwestern Ontario. The study is limited in reliability and generalizability due to the small sample size and homogeneity of participants. The initial exploratory findings can be used as a foundation for future research to expand on key themes with additional focus group sessions or complementary methodologies.