Patient Journey: A Qualitative Study of Hepatocellular Carcinoma Patient Experience
Liu, M.; Loxton, M.
Show abstract
Patients living with hepatocellular carcinoma (HCC) face significant barriers to receiving quality care, including delays in diagnosis and treatment, disease stigma, and financial challenges. This paper develops a three-part measurement system to categorize patient experiences of the care journey. Patient experiences were classified in terms of grounded constructs such as education, self-advocacy, and medical record utilization, as well as integrated care teams, including support groups, counselors, dietitians, palliative care providers, and navigators. These constructs were additionally cross-categorized in terms of care quality and root cause.
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