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Understanding Data Differences across the ENACT Federated Research Network
2025-01-17
health informatics
Title + abstract only
View on medRxiv
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ObjectiveFederated research networks, like Evolve to Next-Gen Accrual of patients to Clinical Trials (ENACT), aim to facilitate medical research by exchanging electronic health record (EHR) data. However, poor data quality can hinder this goal. While networks typically set guidelines and standards to address this problem, we developed an organically evolving, data-centric method using patient counts to identify data quality issues, applicable even to sites not yet in the network. Materials and ...
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