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Whose quality of life is it anyway? Evaluation of quality of life tools for children with complex needs accessing specialist leisure provision.
2023-11-16
pediatrics
Title + abstract only
View on medRxiv
Show abstract
Studies of quality of life (QoL) routinely exclude children with complex needs. These children struggle to access leisure activities, particularly those with severe communication needs or challenging behaviour. Sparkle provides specialised leisure services to children and young people (0-17 years) with complex needs in South Wales, UK. We aimed to evaluate previously validated tools to measure QoL with this population. Three tools were assessed over a 6-year period - PedsQL, KINDLR and QI-Disab...
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